Dreaming Of Breathing





First published 2024 by Keep Me Breathing

Registered Charity Number: 1201757 83, Rowan Avenue, Hove, BN3 7JH www.keepmebreathing.com ISBN: 978-1-3999-9364-7 Text copyright © Åbiella Berns, 2024 Illustrations copyright © Freya Whitelaw, 2024 The right of Åbiella Berns and Freya Whitelaw to be identified as the author and illustrator of this work has been asserted by them in accordance with the Copyright, Designs and Patents Act, 1988. All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means (electronic, mechanical, photocopying, recording or otherwise), without the prior written permission of the publisher. A CIP catalogue record for this book is available from the British Library. Printed in the UK by Tansleys Printers, Seaford, East Sussex, on paper from environmentally accredited stocks using vegetable-based inks.

First published 2024 by Keep Me Breathing

This book is dedicated to all the families around

the world affected by CCHS.

This book is dedicated to all the families around

“Meet my best friend,

Beau,” says Casper. “No!” says Beau. “Meet my best friend first. He’s called Casper and we’re really different.”

“Meet my best friend,

“I love the trampoline,”

says Beau. “But I prefer playdough,” says Casper. “I like face painting,” says Beau. “And I hate it,” says Casper.

“I love the trampoline,”

“In one way though, we’re exactly

the same,” says Casper. “When we sleep we can’t breathe on our own like everyone else we know.” “Grandpa mumbles strange words when he sleeps,” says Beau.

“In one way though, we’re exactly

“Mum makes a clicking

sound with her tongue,” says Casper. “Moses, your cat, moves his legs like he’s running,” says Beau. “He is running,” says Casper. “In his dreams,” says Beau.

“Mum makes a clicking

“When we sleep we need

help to breathe like the people who put out fires,” says Casper. “And the people who dive in the ocean with turtles, squid and fish,” says Beau.

“When we sleep we need

“But fish don’t need help to breathe,” says Beau.

“They would if they lived on land,” says Casper. “Does that mean if I leant a fish my ventilator it could come to our school?” says Beau. “I think so,” says Casper.

“But fish don’t need help to breathe,” says Beau.



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